We’re proud to share this honest, witty and deeply relatable blog from our supporter Fiona Scott-Barrett, who lives with Best disease, a rare inherited condition affecting the macula (the central part of the retina). It typically leads to progressive central vision loss.
From navigating bus stops and supermarkets to explaining why she might walk past friends in the street, Fiona paints a vivid picture of life with a “hidden” disability, and the realities that many people never see.
Her story highlights something simple but powerful:
Sometimes the best thing you can ask is, “Do you need help?”
Read Fiona’s full story and see the world through her eyes.
Shop our visual disability symbol armbands and awareness items here: